Chemo Restart and Update 9/26/08

KK had a Dr's appointment on Monday mainly to check on his fingers and toes.. not his head and shoulders, knees and toes, just his fingers and toes :-)
Well, Everything looks great and he is healing very quickly from the side effects of the Chemo. Most importantly though he is not in any pain currently and he was even able to wear tennis shoes without pain!! He had another appointment on Thursday just for one more check up. He has a CT scan and a bone scan set for Monday. He will most liekly also start the lower dose of the chemo. Becuase it's a clinical trial, the Dr's don't know if the side effect symptoms will return, but if they do we now know the warning signs!

As for the game.....Here's what Alanna told me about that and I qutoe

......"sooooooo much fun. We met Matt Hasselbecks wife and Craig
Terrills wife. They gave us t-shirts and a book of the players. Kelton met Craig
and got his autograph and we also met Marcus Truffant. Who happens to be one of
Richards favs. Being on the field was so cool. I tried to get Kk to streak to
the 50 yard line, but you know how he likes to "obey the rules"---whatever. I
did get him to run towards the end zone and he laid flat on his back enjoying
the grass. It was all to cool. And of course I couldn't resist so I strutted
down the line and pretended I was a sea gal. I think they will be calling me
soon to ask me to join the squad. Man I was sooo good. We walk down the hall
and passed the locker room, where Richie tried to get in by slowly jogging down
the hall and ran into security...we wanted the guard to taser him but no go. We
took [a friend] with us and he took pictures so hopefully we will get to
share with everyone soon."

That's the update for now look for the pictures in the gallery soon once I get them from Alanna :-)

Next update after scans and back on Chemo next week. Have a great weekend and keep the positive energy a-flowin'! You all know that it's working and that we can TELL when you let it drop a little!! :-)

Uncle Mikey

Blisterin' update...

Well KK's been off of the Clinical Trial Chemo now for about days and the blisters are healing well and his Blood Pressure is back down to normal. He's a super trooper!! They find out when they will be going back on the chemo, at a lower dosage, next week. I'm sure he's not looking forward to that, but it's amazing the help they are providing to cancer research and hopefully blistering this cancers Heine at the same time. Hang in there KK and all you loyal readers thank you for the 2 out rally!! The positive thoughts, prayers and guestbook entries really helped KK get through this tough patch and I and the family thank you all! It's a long tough battle but KK is strong and tough! I'll update again with more in fo when I get it..

oh and be sure to root for the Seahawks on Sunday! The staff at Children's, gave KK tickets to the game and he gets to meet Craig Terrel after the game too!! so we need to be sure that the Seahawks win so that big boy Craig isn't to scary after the game!

Uncle Mikey

Update 9/16/08 - Clinical Trial

Dear KK Fans, I haven't updated in awhile as there were some changes to treatment options for KK that we were waiting to see somethings... well at the last minute before they were to begin the next step in KK's treatment that consisted of taking out one lobe of his lung and more chemo and some laser ablations of tumors they got a call from their team at Children's. The team had found a new clinical trial that had jsut opened for kids and that KK was eligible for it. They had to make a snap decision in two days, so we had a bit of a family meeting and everyone agreed that the trial was the way to go but ultimately it was Alanna and Richards tough decision. They chose to enroll KK in the trial. The trial consists of a ton of tests and a daily chemo pill with the potential for some not pleasant side effects. The first phase of the trial that KK was enrolled in was to study some of the side effects but also to find the correct dosages for kids with this particual type of drug as it has been very successful in treating some cancers like Kelton's. He's been on it now for a few weeks and the side effects are much worse then expected. KK is in constant pain with blisters and sores on his hands, feet and face and his Blood pressure is very high. He's on pain medication, but even that doesn't help much. They have now stopped the medication to let him heal the sores and blisters and then they will start a lower dosage. They don't know if the drug is doing what it's supposed to yet as they haven't had any scans to find out. Everyone please pass the word that KK and family need your support, love and prayers to help them through this tough times. I'll update again when we know more, until then make a deal with yourslef to visit the site, and resend it to your friends to drop by the guestbook and send your positive energy to KK, Richard and Alanna.

Uncle Mike